In other to make Robb Foundation to achieves its mission and provide comprehensive service to its users the following objectives were created:
Create awareness of health and social needs on he right and potential of persons with downs syndrome in order to educate and change society's negative, superstitious and insensitive attitudes towards them.
Fighting for equal rights, campaign for greater opportunities
Advocacy and support for careers
Student volunteering programmes
Inclusive educative centers
Fund raising programs
Down Syndrome sometimes called (Down's Syndrome) is a condition in which a child is born with an extra copy of their 21st chromosome - hence its other name trisomy 21.This Causes physical and mental development of delays and disabilities. At birth, babies with down syndrome usually have certain characteristics signs including:
Flat facial features
Small head and ears
Eyes that slant upwards
Atypically shaped ears
Poor Muscle tone
However, people living with down syndrome can live healthy
CHILD HEALTHHere are some key health issues for children with Down Syndrome. Should you require more information or advice please contact us
Ears and hearing
The majority of individuals with Down Syndrome have had otitis media with effusion in childhood which may have required treatment with ventilation tubes. In many glue ear issues resolves in their adolescent years however in small proportion of individuals resultant perforation of the ear drums may persist. The ear of an individual with Down Syndrome should be examined at the yearly health check for the evidence of perforation.
As a result of narrow external auditory canals which are associated with Down Syndrome, wax accumulation can obstruct the ear canal . Regular dewaxing in the GP practice can keep the canal open.
Early onset hearing loss
early onset age related hearing loss is common in individuals with down Syndrome and easily overlooked. the hearing loss may start in early adulthood.A yearly hearing assessment will detect the onset of the hearing loss.
Consideration should be given to provision of hearing aids when the hearing threshold are significant enough to disrupt daily activities , for example repeated requested to turn the volume on the TV, radio or personal audio device or difficulty to hear in the presence of background noise.